Portál pro vzácná onemocnění a léky pro vzácná onemocnění
COVID-19 & Rare diseases
Zdroje informací o vzácných onemocněních pro uprchlíky/vysídlené osoby
To help you find your way around our website, here is a list of our principal services that might be of interest, depending on your profile.
Menu
You are a health professional
You are a researcher
You are a patient
You are a representative of a patient organisation
You are a member of the Industry
You are a journalist
You can also consult our site map.
You are a health professional
-
Find online:
- An encyclopaedia of rare diseases
- An encyclopaedia for the general public
- A support-to-diagnosis tool
- Clinical and emergency guidelines
- Medical laboratories and diagnostic tests
- Specialised clinics
- Patient organisations
- A form to register or update your activities
- Orphanet Journal of Rare Diseases (OJRD)
You are a researcher
-
Find online:
- Research projects
- Registries and biobanks
- Registries
- Clinical trials
- Classifications of rare diseases
- Genes and associated diseases
- Orphanet Journal of Rare Diseases (OJRD)
You would like to download Orphanet data: please visit www.orphadata.com
You are a patient
-
Find online:
- An encyclopaedia for the general public
- Patient organisations
- Specialised clinics
- Clinical and emergency guidelines
You are a representative of a patient organisation
You are a member of the Industry
-
Find online:
- The list of orphan drugs
- Registries
- Prevalence of rare diseases
- A form to register or update your activities
You would like to download Orphanet data: please visit www.orphadata.com
You are a journalist
Please visit our contact page to find our contact information.
You can also consult the websites of each of the Orphanet consortium’s partner countries in the “Orphanet in partner countries” section of the homepage.
Site map
- Vzácná onemocnění
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- Classifications
- Genes
- An encyclopaedia for the general public
- Emergency guidelines
- Léčivé přípravky pro vzácná onemocnění
- Specializovaná centra a sítě
- Diagnostické testy
- Výzkum a studie
- Research projects
- Clinical trials
- Registries and biobanks
- Registries
- Platforms
- Register / Update your activity
- Networks
- Pacientské organizace
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- Services for organisations
- Helplines for personal queries
- Register / Update your activity
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- Odborníci a instituce
- Search for a person
- Search for an institution
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- Get in touch
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