Knowledge on rare diseases and orphan drugs

Zentrum für histiozytäre Erkrankungen bei Erwachsenen (Assoziiertes Nationales Zentrum im Europäischen Referenznetzwerk EuroBloodNet) Center for histiocytic disorders in adults (Associated National Center in the European Reference Network EuroBloodNet)

Ordensklinikum Linz GmbH Elisabethinen

Spezialambulanz für Multiple Myelome, Amyloidosen und andere Paraprotein-getriggerte Systemerkrankungen (Assoziiertes Nationales Zentrum im Europäischen Referenznetzwerk EuroBloodNet) Outpatient clinic for multiple myeloma, amyloidoses and paraprotein-driven diseases (Associated National Center in the European Reference Network EuroBloodNet)

Universitätsklinikum - AKH Wien

Expertisecentrum voor hemoglobinopathieën - UZA Expertise centre for hemoglobinopathies - Antwerp University Hospital

Antwerp University Hospital - UZA

Multidisciplinair expertenteam/Centrum Zeldzame Ziekten - Universitair Ziekenhuis Antwerpen Multidisciplinary expert team/Centre for Rare Diseases - University Hospital of Antwerp

Antwerp University Hospital - UZA

Referentiecentrum voor hemofilie en andere erfelijke bloedingsziekten (afdeling kinderen) - UZA Reference centre for haemophilia and other hereditary bleeding disorders (children section) - Antwerp University Hospital

Antwerp University Hospital - UZA

Referentiecentrum voor hemofilie en andere erfelijke bloedingsziekten (afdeling volwassenen) - UZA Reference centre for haemophilia and other hereditary bleeding disorders (adults section) - Antwerp University Hospital

Antwerp University Hospital - UZA

Equipe d'experts multidisciplinaire/Centre pour les maladies rares - Hôpital Universitaire de Bruxelles (H.U.B) Multidisciplinary expert team/Centre for rare diseases - Brussels University Hospital

Hôpital Universitaire de Bruxelles (H.U.B)

Centre expert des tumeurs malignes lymphoïdes - Institut Jules Bordet Expert centre for lymphoid malignancies - Institut Jules Bordet

Hôpital Universitaire de Bruxelles (H.U.B) - Site Institut Jules Bordet

Centre de référence de l'hémophilie (section adultes) - UCL Saint-Luc Haemophilia Centre of Reference (adults section) - UCL Saint-Luc

Cliniques universitaires Saint-Luc - UCLouvain

Centre de référence de l'hémophilie (section enfants) - UCL Saint-Luc Haemophilia Centre of Reference (children section) - UCL Saint-Luc

Cliniques universitaires Saint-Luc - UCLouvain

Centre expert pour la prise en charge des pathologies héréditaires du globule rouge - H.U.B (Erasme - HUDERF) Expert centre for the management of hereditary red blood cells disorders - H.U.B (Erasme - HUDERF)

Hôpital Universitaire de Bruxelles (H.U.B) - Site Hôpital Erasme

Equipe d'experts multidisciplinaire/Centre pour les maladies rares - Cliniques Universitaires Saint-Luc Multidisciplinary expert team/Centre for rare diseases - Saint-Luc University Hospital

Cliniques universitaires Saint-Luc - UCLouvain

Centre expert des hémopathies myéloïdes, des anomalies du globule rouge, de l'hémochromatose et d'autres désordres liés au fer- CHU Liège Expert centre for myeloid malignancies, red blood cell defects, haemochromatosis and other iron disorders - CHU Liège

CHU de Liège - Domaine universitaire du Sart Tilman

Equipe d'experts multidisciplinaire/Centre pour les maladies rares - CHU Liège Multidisciplinary expert team/Centre for rare diseases - CHU Liège

CHU de Liège - Domaine universitaire du Sart Tilman

Hemofilie Referentiecentrum (afdeling kinderen) - UZ Leuven - Het nationaal Coördinatiecentrum voor hemofilie Haemophilia Reference Centre (children section) - UZ Leuven - The National Coordination Center for Haemophilia

UZ Leuven - Campus Gasthuisberg

Hemofilie Referentiecentrum (afdeling volwassenen) - UZ Leuven - Het nationaal Coördinatiecentrum voor hemofilie Haemophilia Reference Centre (adults section) - UZ Leuven - The National Coordination Center for Haemophilia

UZ Leuven - Campus Gasthuisberg

Multidisciplinair expertenteam/Centrum Zeldzame Ziekten - Universitair Ziekenhuis Leuven Multidisciplinary expert team/Centre for Rare Diseases - University Hospitals Leuven

UZ Leuven - Campus Gasthuisberg

Pediatric Hematology and Oncology Clinic

University hospital Varna

Rare Haematological Diseases expert centre

National Specialized Hospital for Active Treatment of Haematologic Diseases

Hemoglobinopathies clinic

Archbishop Makarios III hospital

Highly specialized center for rare hematological disease

Institute of hematology and blood transfusion

Highly specialized center for rare hematological disease

University hospital Olomouc

Highly specialized center for rare hematological disease

University hospital Brno

Center for Rare Diseases

Rigshospitalet

Expert center on hemoglobinopathies

Aarhus Universitetshospital - Tage-Hansens Gade

Hematoloogiliste haiguste keskus Centre for Rare Haematologic Diseases (Associated National Centre in the EuroBloodNet)

Competence Centre for Rare Diseases - Tartu University Hospital

Multidistsiplinaarne harvikhaiguste kompetentsikeskus Multidisciplinary expert team / Competence Centre for Rare Diseases

Competence Centre for Rare Diseases - Tartu University Hospital

Expert Centre on Rare Hematological Diseases

HUS - Helsinki University Hospital

Centre de référence de l'hémophilie et autres déficits rares en protéines de la coagulation - Site coordonnateur Reference centre for hemophilia and other rare bleeding disorders - Coordinator site

CHU de Lyon HCL - GH Est-Hôpital Louis Pradel

Centre de référence des hémochromatoses et autres maladies métaboliques du fer - Site coordonnateur Reference centre for hemochromatosis and other iron overload diseases - Coordinator site

CHU de Rennes - Hôpital Pontchaillou

Centre de Référence de la Maladie de Willebrand - Site coordonnateur Reference centre for Willebrand disease - Coordinator site

CHU de Lille - Hôpital Claude Huriez

Centre de référence des syndromes drépanocytaires majeurs, thalassémies et autres pathologies rares du globule rouge et de l'érythropoïèse - Site coordonnateur Reference centre for sickle cell disease, thalassemia and other red cell disorders - Coordinator site

Hôpitaux Universitaires Henri Mondor

Centre de référence des aplasies médullaires acquises et constitutionnelles - Site coordonnateur Reference centre for rare medullar aplasias - Coordinator site

GHU AP-HP Nord. Université de Paris - Hôpital Saint-Louis

Centre de référence des histiocytoses - Site constitutif Reference centre for Langerhans cell histiocytosis - Constitutive site

AP-HP.Sorbonne Université - Hôpital d'Enfants Armand-Trousseau

Centre de référence des mastocytoses - Site coordonnateur Reference centre for mastocytosis - Coordinator site

Hôpital Necker-Enfants Malades

Centre de référence des microangiopathies thrombotiques - Site coordonnateur Reference centre for thrombotic microangiopathies - Coordinator site

AP-HP.Sorbonne Université - Hôpital Saint-Antoine

Centre de référence des syndromes drépanocytaires majeurs, thalassémies et autres pathologies rares du globule rouge et de l'érythropoïèse - Site constitutif Reference centre for sickle cell disease, thalassemia and other red cell disorders - Constitutive site

Hôpital Necker-Enfants Malades

Centre de compétence des cancers rares du système nerveux central Competence centre for rare central nervous system tumors

CLCC Hôpital René Huguenin - Institut Curie

Centre de référence de l'amylose AL et autres maladies par dépôt d'immunoglobulines monoclonales - Site coordonnateur Reference centre for primary amyloidosis and others immunoglobulin deposition diseases - Coordinator site

CHU de Limoges - Hôpital Dupuytren

Centre de référence des hémochromatoses et autres maladies métaboliques du fer - Centre de compétence Reference centre for hemochromatosis and other iron overload diseases - Competence centre

CHU de Montpellier - Hôpital Saint-Eloi

Centre de référence des syndromes drépanocytaires majeurs, thalassémies et autres pathologies rares du globule rouge et de l'érythropoïèse - Site constitutif (adultes) Reference centre for sickle cell disease, thalassemia and other red cell disorders - Constitutive site (adults)

CHU de Montpellier - Hôpital Saint-Eloi

Centre de référence des syndromes drépanocytaires majeurs, thalassémies et autres pathologies rares du globule rouge et de l'érythropoïèse Antilles-Guyane - Site coordonnateur Reference centre for sickle cell disease, thalassemia and other red cell disorders Antilles-Guyane - Coordinator site

CHU de la Guadeloupe

Centre de ressources et de compétences des maladies hémorragiques rares Ressources and Competence Centre for rare bleeding disorders

CHU de Marseille - Hôpital de la Timone

Centre de référence des pathologies plaquettaires constitutionnelles - Site coordonnateur Reference centre for disorders due to a constitutional platelet anomaly - Coordinator site

CHU de Marseille - Hôpital de la Timone

Centre de référence des syndromes drépanocytaires majeurs, thalassémies et autres pathologies rares du globule rouge et de l'érythropoïèse - Site constitutif Reference centre for sickle cell disease, thalassemia and other red cell disorders - Constitutive site

CHU de Marseille - Hôpital de la Timone

Gerinnungsambulanz und Hämophiliebehandlung (DHG Hämophilie-Behandlungseinrichtung: CCC) Coagulation disorders clinic

Kinder- und Jugendklinik am Universitätsklinikum Freiburg

ZSE Heidelberg: Amyloidose-Zentrum Amyloidosis clinic

Universitätsmedizin Heidelberg

ZSE Ulm - Fachzentrum für Seltene Störungen der Hämatopoese und Immundefekte (ZSHI): Spezialsprechstunde für paroxysmale nächtliche Hämoglobinurie und aplastische Anämie (Qualitätsgesichert durch die Stiftung Lichterzellen) Paroxysmal nocturnal hemoglobinuria and aplastic anemia clinic

Zentrum für Seltene Erkrankungen am Universitätsklinikum Ulm

ZSE Würzburg: Zentrum für angeborene Blutzellerkrankungen Centre for Rare Red Cell and Platelet Defects

Universitätsklinikum Würzburg

Ambulanz für Bluterkrankungen Rare hematologic disease clinic

Otto-Heubner-Centrum für Kinder- und Jugendmedizin

ZSE Hamburg: Versorgungscentrum für Hämophilie (DHG e.V. Hämophilie-Behandlungseinrichtung: CCC) Haemophilia centre

UKE - Universitätsklinikum Hamburg-Eppendorf

Spezialambulanz für Gerinnungsstörungen Coagulation disorders clinic

Universitätsklinikum Aachen

Spezialsprechstunde für Gerinnungsstörungen (DHG Hämophilie-Behandlungseinrichtung: HB) Coagulation disorders clinic

Universitätsklinikum Aachen

Exzellenzzentrum für myelodysplastische Syndrome und Leukämiesprechstunde MDS Center of Excellence and Leukemia clinic

Universitätsklinikum Köln

Hämato-onkologische Ambulanz mit CLL-Spezialsprechstunde Haemato-oncology clinic

Universitätsklinikum Köln

Zentrum für Kinderhämatologie

Gemeinschaftsklinikum Mittelrhein gGmbH

Spezialambulanz für Hämostaseologie (DHG e.V. Hämophiliezentren: HBE) Coagulation disorders clinic

Universitätsklinikum Carl Gustav Carus an der TU Dresden

Exzellenzzentrum für myelodysplastische Syndrome MDS Center of Excellence

Universitätsklinikum Leipzig AöR

Hämatologische Ambulanz Haematology clinic

Universitätsklinikum Leipzig AöR

Expert Center on Rare Hematological Diseases

Hellenic Air Force & VA General Hospital

Expert Center on Rare Hematological Diseases

Laiko General Hospital

Expert Center on Rare Hematological Diseases

Aghia Sophia Children's Hospital

Expert Center on Rare Hematological Diseases

University General Hospital 'Attikon'

Expert Center on Rare Hematological Diseases

University of Debrecen

Haemophilia and Allied Bleeding Disorder Service

Children's Health Ireland @ Crumlin

Centro di Riferimento per le emoglobinopatie Centre of Expertise for hemoglobinopaties

AOU Università degli Studi della Campania "Luigi Vanvitelli"

Centro di Riferimento per le emoglobinopatie Centre of Expertise for hemoglobinopathies

Azienda Ospedaliera "A. Cardarelli"

Consulenza specialistica per l'ematologia Hematology specialised clinic

CEINGE - Biotecnologie Avanzate Srl

Centro di Riferimento per le malattie ematologiche ed oncoematologiche pediatriche Centre of Expertise for pediatric hematologic and oncohematologic diseases

IRCCS Azienda Ospedaliero Universitaria di Bologna, Policlinico di Sant'Orsola

Centro di Riferimento per le emoglobinopatie Centre of Expertise for hemoglobinopathies

A.O.U. di Ferrara - Nuovo Ospedale S.Anna - Sede di Cona

Centro Esperto per le malattie ematologiche rare Expert Center for rare hematological diseases

IRST - Istituto Scientifico Romagnolo per lo studio e la cura dei Tumori

Centro di Riferimento per le alterazioni congenite del metabolismo del ferro Centre of Expertise for rare anemias and congenital disorders of iron metabolism

AOU Policlinico di Modena

Centro di Riferimento per le anemie rare Centre of Expertise for rare anemia

AOU Policlinico di Modena

Centro di Riferimento per le porfirie Centre of Expertise for porphyria

AOU Policlinico di Modena

Centro di Riferimento Regionale per le malattie emorragiche rare Regional Centre of Expertise for rare bleeding disorders

Azienda Ospedaliero-Universitaria di Parma

Centro Esperto per le malattie ematologiche rare Expert Center for rare hematological diseases

Ospedale Santa Maria delle Croci

Centro Esperto per le malattie ematologiche rare Expert Center for rare hematological diseases

AUSL IRCCS Arcispedale Santa Maria Nuova

Centro di Riferimento per i difetti rari della coagulazione Centre of Expertise for rare coagulation disorders

Fondazione Policlinico Universitario Agostino Gemelli IRCCS

Centro di Riferimento per l'ematologia pediatrica Centre of Expertise for pediatric hematology

IRCCS Ospedale Pediatrico Bambino Gesù - SEDE GIANICOLO

Centro di Riferimento per le malattie ematologiche rare Centre of Expertise for rare hematological diseases

AOU Policlinico Umberto I

Centro di Riferimento per l'anemia di Fanconi Centre of Expertise for Fanconi anemia

IRCCS Istituto G. Gaslini - Ospedale Pediatrico

Centro di Riferimento per l'ematologia pediatrica Centre of Expertise for pediatric hematology

IRCCS Istituto G. Gaslini - Ospedale Pediatrico

Centro di Riferimento per la neutropenia congenita Centre of Expertise for congenital neutropenia

IRCCS Istituto G. Gaslini - Ospedale Pediatrico

Centro di Riferimento per le anemie rare e le alterazioni congenite del metabolismo del ferro Centre of Expertise for rare anemias and congenital disorders of iron metabolism

Ente Ospedaliero Ospedali Galliera

Centro di Riferimento per le aplasie costituzionali ed acquisite Centre of Expertise for constitutional and acquired aplasias

IRCCS Istituto G. Gaslini - Ospedale Pediatrico

Centro di Riferimento per i difetti rari della coagulazione e le anemie rare Centre of Expertise for rare coagulation disorders and rare anemias

ASST Papa Giovanni XXIII

Centro di Riferimento per i difetti rari della coagulazione e le anemie rare Centre of Expertise for rare coagulation disorders and rare anemias

ASST Spedali Civili di Brescia

Centro di Riferimento per le anemie aplastiche acquisite rare Expert Center for rare acquired aplastic anemia

IRCCS Ospedale San Raffaele

Centro di Riferimento per le anemie rare Centre of Expertise for rare anemias

Fondazione IRCCS Ca' Granda - Ospedale Maggiore Policlinico

Centro di Riferimento per l'emocromatosi ereditaria rara e l'iperferritinemia Centre of Expertise for rare hereditary hemochromatosis and hyperferritinemia

Fondazione IRCCS San Gerardo

Centro di Riferimento per l'emoglobinopatia e l'anemia costituzionale da anomalie del metabolismo del ferro Centre of Expertise for hemoglobinopathy and constitutional anemia due to iron metabolism disorders

Fondazione IRCCS San Gerardo

Centro di Riferimento per le emoglobinopatie Centre of Expertise for hemoglobinopathies

Fondazione IRCCS San Gerardo

Centro di Riferimento per le malattie ematologiche rare Centre of Expertise for rare hematologic diseases

Fondazione IRCCS Policlinico San Matteo

Centro di Riferimento per le malattie oncoematologiche rare Centre of Expertise for rare oncohematologic diseases

IRCCS Istituto Clinico Humanitas

Centro Esperto per le malattie ematologiche rare

A.O.U. Ospedale di Circolo e Fondazione Macchi - Università dell'Insubria

Centro di Esperto per le malattie ematologiche rare Expert Center for rare hematological diseases

Ospedali Riuniti "Umberto I - G.M. Lancisi - G. Salesi" - Presidio Torrette

Centro di Riferimento per le anemie rare Centre of Expertise for rare anemia

Azienda Ospedaliero-Universitaria San Luigi Gonzaga

Centro di Riferimento per i difetti rari della coagulazione Centre of Expertise for rare coagulation disorders

A.O.U. Città della Salute e della Scienza di Torino - Ospedale Molinette

Centro Interregionale di Riferimento per i difetti rari della coagulazione e le anemie rare pediatriche Interregional centre of expertise for rare coagulation disorders and rare pediatric anemias

Ospedale Pediatrico Giovanni XXIII

Centro di Riferimento Regionale per le malattie ematologiche rare Regional Centre of Expertise for rare hematologic diseases

Azienda Ospedaliera Ospedali Riuniti "Villa Sofia-Cervello" - Presidio Cervello

Centro di Riferimento per i difetti rari della coagulazione Centre of Expertise for rare coagulation disorders

Azienda Ospedaliero Universitaria Careggi

Centro di Riferimento per l'anemia costituzionale rara Centre of Expertise for rare constitutional anemia

Fondazione "Gabriele Monasterio" - Consiglio Nazionale delle Ricerche CNR

Centro di Riferimento per le neoplasie ematologiche Centre of Expertise for hematologic neoplasms

Azienda Ospedaliero Universitaria Senese - Policlinico Santa Maria alle Scotte

Centro di Riferimento per i difetti rari della coagulazione Centre of Expertise for rare coagulation disorders

Azienda Ospedaliera di Padova

Centro di Riferimento per le malattie ematologiche e oncoematologiche pediatriche Centre of Expertise for pediatric hematologic and oncohematologic diseases

Azienda Ospedaliera di Padova

Centro di Riferimento per le anemie emolitiche congenite Centre of Expertise for rare hemolytic anemia

Azienda Ospedaliera Universitaria Integrata di Verona - Ospedale Borgo Roma

Centro di Riferimento per le malattie del metabolismo del ferro Centre of Expertise for disorders of iron metabolism

Azienda Ospedaliera Universitaria Integrata di Verona - Ospedale Borgo Roma

Centro di Riferimento per le malattie ematologiche rare Centre of Expertise for rare hematologic diseases

Azienda ULSS8 Berica

Hemofilijos ir retuju kresejimo sutrikimu centras Centre for Hemophilia and Rare Coagulation Disorders

Vilnius University Hospital Santariskiu Klinikos - Childrens Hospital

Radboudumc Expertisecentrum voor Hemofilie en Zeldzame Stollingsstoornissen Radboudumc Center of Expertise for Haemophilia and Rare Coagulation Disorders

Radboudumc - Radboud universitair medisch centrum

Radboudumc Expertisecentrum voor IJzerstofwisselingsziekten Radboudumc Center of Expertise for Iron Disorders

Radboudumc - Radboud universitair medisch centrum

Radboudumc Expertisecentrum voor Myeloïde Aandoeningen en Cellulaire Immuuntherapie Radboudumc Center of Expertise for Myeloid Hematopoietic Disorders and Cellular Immune Therapy

Radboudumc - Radboud universitair medisch centrum

Radboudumc Expertisecentrum voor Paroxysmale Nachtelijke Hemoglobinurie en Aanverwante Aplastische Anemie Radboudumc Center of Expertise for Paroxysmal Nocturnal Hemoglobinuria and Related Aplastic Anaemia

Radboudumc - Radboud universitair medisch centrum

UMCG Expertisecentrum voor Benigne Hematologie UMCG Center of Expertise for Benign Hematology

UMCG - Universitair Medisch Centrum Groningen

Amsterdam UMC Expertisecentrum voor Zeldzame Bloedstollingsstoornissen en Rode Bloedcel Afwijkingen Amsterdam UMC Expert Center for Rare Coagulation and Red Blood Cell Defects

Amsterdam UMC

UMC Utrecht Expertisecentrum voor Maligne Hematologie UMC Utrecht Center of Expertise for Malignant Haematology

UMC Utrecht - Universitair Medisch Centrum Utrecht

Van Creveldkliniek - UMC Utrecht Expertisecentrum voor Benigne Hematologie, Trombose en Hemostase Van Creveldkliniek - UMC Utrecht Center of Expertise for Benign Haematology, Thrombosis and Haemostasis

UMC Utrecht - Universitair Medisch Centrum Utrecht

Erasmus MC-LUMC Expertisecentrum voor Congenitaal Beenmergfalen en Genetische Predispositie Acute Leukemie Erasmus MC-LUMC Center of Expertise for Congenital Bone Marrow Failure and Leukemia Predisposition Syndromes

LUMC - Leids Universitair Medisch Centrum

LUMC Expertisecentrum voor Zeldzaam Beenmergfalen LUMC Expert Center for Rare Bone Marrow Failure

LUMC - Leids Universitair Medisch Centrum

LUMC-HagaZiekenhuis Expertisecentrum voor Hemofilie en Aanverwante Aandoeningen LUMC-HagaZiekenhuis Expert Center for Hemophilia and Related Disorders

LUMC - Leids Universitair Medisch Centrum

LUMC-HagaZiekenhuis Expertisecentrum voor Zeldzame Hemoglobinopathie LUMC-HagaZiekenhuis Expert Center for Rare Hemoglobinopathies

LUMC - Leids Universitair Medisch Centrum

Erasmus MC Expertisecentrum voor Congenitaal Beenmergfalen en Genetische Predispositie Acute Leukemie Erasmus MC Center of Expertise for Congenital Bone Marrow Failure and Leukemia Predisposition Syndromes

Erasmus MC - Erasmus Medisch Centrum

Erasmus MC Expertisecentrum voor Hematologische Maligniteiten Erasmus MC Center of Expertise for Hematologic Malignancies

Erasmus MC - Erasmus Medisch Centrum

Erasmus MC Expertisecentrum voor Sikkelcelziekte en Thalassemie Erasmus MC Center of Expertise for Sickle Cell and Thalassemia

Erasmus MC - Erasmus Medisch Centrum

Erasmus MC Expertisecentrum voor Zeldzame Bloedstollingsstoornissen Erasmus MC Center of Expertise for Rare Bleeding Disorders

Erasmus MC - Erasmus Medisch Centrum

Expert Center on Rare Hematological Diseases

Uniwersyteckie Centrum Kliniczne

Centrum Eksperckie Nowotworow Ukladu Chlonnego Expert Center for Lymphoid Malignancies

Centrum Onkologii - Instytut im. Marii Sklodowskiej-Curie

Expert Center on Rare Hematological Diseases - CHUC, EPE (EuroBloodNet) Expert Center on Rare Hematological Diseases - CHUC, EPE (EuroBloodNet)

Unidade Local de Saúde de Coimbra, EPE - ULSC, EPE [CHUC/HP]

Expert Center on Rare Hematological Diseases - CHUSA, EPE (ERN EuroBloodNet) Expert Center on Rare Hematological Diseases - CHUSA, EPE (ERN EuroBloodNet)

Unidade Local de Saúde de Santo António, EPE - ULSSA, EPE [CHUSA]

CSUR - Unidad de referencia nacional en coagulopatías congénitas CSUR - National unit of expertise for congenital coagulopathies

Hospital Universitario Virgen del Rocío

CSUR - Unidad de referencia nacional en eritropatología hereditaria CSUR - National unit of expertise for hereditary erythropathology

Hospital Universitari Vall d'Hebron

CSUR - Unidad de referencia nacional en eritropatología hereditaria CSUR - National unit of expertise for hereditary erythropathology

Hospital de la Santa Creu i Sant Pau

CSUR - Unidad de referencia nacional en síndromes de fallo medular congénito CSUR - National unit of expertise for congenital spinal cord syndromes

Hospital Universitari Vall d'Hebron

CSUR - Unidad de referencia nacional en síndromes de fallo medular congénito CSUR - National unit of expertise for congenital spinal cord syndromes

Hospital de la Santa Creu i Sant Pau

UEC - Unidad de experiencia clínica regional en enfermedades minoritarias hematológicas no oncológicas UEC - Unit of regional clinical experience in rare non-oncological hematological diseases

Hospital Universitari Vall d'Hebron

CSUR - Unidad de referencia nacional en eritropatología hereditaria CSUR - National unit of expertise for hereditary erythropathology

Hospital Sant Joan de Déu Barcelona

CSUR - Unidad de referencia nacional en eritropatología hereditaria CSUR - National unit of expertise for hereditary erythropathology

Hospital Materno Infantil Gregorio Marañón

Expertteam för koagulationssrubbningar, ERN EuroBloodNet Expert team for coagulation disorders, ERN EuroBloodNet

Karolinska Universitetssjukhuset

Expertteam för ovanliga blodsjukdomar, ERN EuroBloodNet Expert team for rare blood disorders, ERN EuroBloodNet

Karolinska Universitetssjukhuset

Expertteam för tromboembolisk sjukdom hos barn, ERN EuroBloodNet Expert team for thromboembolic disease in children, ERN EuroBloodNet

Karolinska Universitetssjukhuset