Wissen über seltene Krankheiten und Orphan Drugs

Expertisecentrum voor zeldzame hepatische ziekten_Universitair Ziekenhuis Antwerpen Expert centre on rare hepatological diseases_University Hospital Antwerp

Antwerp University Hospital - UZA

Multidisciplinair expertenteam/Centrum Zeldzame Ziekten - Universitair Ziekenhuis Antwerpen Multidisciplinary expert team/Centre for Rare Diseases - University Hospital of Antwerp

Antwerp University Hospital - UZA

Centre expert en maladies hépatiques rares de l'adulte - Cliniques Universitaires Saint Luc Expert center for rare liver diseases in adults - Cliniques Universitaires Saint Luc

Cliniques universitaires Saint-Luc - UCLouvain

Centre expert en maladies hépatiques rares de l'enfant - Cliniques Universitaires Saint Luc Expert center for rare liver diseases in children - Cliniques Universitaires Saint Luc

Cliniques universitaires Saint-Luc - UCLouvain

Equipe d'experts multidisciplinaire/Centre pour les maladies rares - Cliniques Universitaires Saint-Luc Multidisciplinary expert team/Centre for rare diseases - Saint-Luc University Hospital

Cliniques universitaires Saint-Luc - UCLouvain

Centrum Medische Genetica Gent - UZ Gent General Genetic Counselling Clinic - Ghent University Hospital

Centrum Medische Genetica Gent - Universitair Ziekenhuis Gent

Expertisecentrum voor zeldzame hepatologische ziekten - Universitair Ziekenhuis Gent Expert centre for rare hepatological diseases - Ghent University Hospital

Universitair ziekenhuis Gent (UZ Gent)

Multidisciplinair expertenteam/Centrum voor Zeldzame Ziekten - Universitair Ziekenhuis Gent Multidisciplinary expert team/Centre for Rare Diseases - University Hospital of Ghent

Universitair ziekenhuis Gent (UZ Gent)

Expertisecentrum voor zeldzame hepatologische ziekten - UZ Leuven Expert centre for rare hepatological diseases - University Hospitals Leuven

UZ Leuven - Campus Gasthuisberg

Multidisciplinair expertenteam/Centrum Zeldzame Ziekten - Universitair Ziekenhuis Leuven Multidisciplinary expert team/Centre for Rare Diseases - University Hospitals Leuven

UZ Leuven - Campus Gasthuisberg

Spezialambulanz für primär biliäre Cholangitis (PBC) und unklare Cholestasesyndrome

Universitätsklinikum Heidelberg - Krehl-Klinik

ZSE Tübingen: Zentrum für seltene Lebererkrankungen (ZSL) Hepatology clinic

ZSE Tübingen

ZSE Erlangen: Zentrum für Seltene Leber-, Pankreas- und Darmerkrankungen Gastroenterology and hepatology clinic

ZSEER - Universitätsklinikum Erlangen

Spezialambulanz für pädiatrische Gastroenterologie und Hepatologie Gastroenterology and hepatology clinic

Kinderklinik und Kinderpoliklinik im Dr. von Haunerschen Kinderspital

Exzellenzzentrum für Neuroendokrine Tumoren (ENETS zertifiziert)

Charité - Universitätsmedizin Berlin (CVK)

ZSE Hamburg: YAEL-Centrum für autoimmune Lebererkrankungen YEAL-Center for Autoimmune Liver Diseases

UKE - Universitätsklinikum Hamburg-Eppendorf

Spezialsprechstunde für Gallengangatresie Biliary atresia clinic

Medizinische Hochschule Hannover

ZSE Aachen - Behandlungs- und Forschungszentrum für seltene Lebererkrankungen und gastrointestinale Erkrankungen: Spezialambulanz für seltene Erkrankungen des Gastrointestinaltrakts und des Pankreas Rare gastrointestinal and pancreatic diseases clinic

Universitätsklinikum Aachen

ZSE Aachen - Behandlungs- und Forschungszentrum für seltene Lebererkrankungen und gastrointestinale Erkrankungen: ZSE Aachen: Spezialambulanz für seltene Erkrankungen der Leber Rare hepatic diseases clinic

Universitätsklinikum Aachen

Gastroenterologisch-hepatologische Ambulanz Gastroenterology-hepatology outpatient clinic

Universitätsklinikum Bonn (AöR)

Spezialambulanz für gastroenterologische Tumoren (DKG e.V. zertifiziert) Gastrointestinal tumor clinic

Universitätsklinikum Bonn (AöR)

ZSE Homburg: Gastroenterologische und Leberambulanz Gastroenterology and hepatology clinic

Universitätsklinikum des Saarlandes

Center for liver transplantation

Rigshospitalet

Centre of Expertise on Rare Hepatological Diseases

Aarhus University Hospital - Skejby

Haruldaste maksahaiguste keskus Centre for Rare Hepatic Diseases (Associated national centre in the ERN RARE LIVER)

Competence Centre for Rare Diseases - Tartu University Hospital

Multidistsiplinaarne harvikhaiguste kompetentsikeskus Multidisciplinary expert team / Competence Centre for Rare Diseases

Competence Centre for Rare Diseases - Tartu University Hospital

Centre of Expertise on Rare Hepatological Diseases

HUS - Helsinki University Hospital

Centre de référence des maladies héréditaires du métabolisme - Site constitutif Reference centre for inherited metabolic diseases - Constitutive site

CHU de Lyon HCL - GH Est-Hôpital Femme Mère Enfant

Centre de référence des maladies vasculaires du foie - Site coordonnateur Reference centre for vascular diseases of the liver - Coordinator site

AP-HP - Hôpital Beaujon

Centre de référence de l'atrésie des voies biliaires et cholestases génétiques - Site coordonnateur Reference centre for biliary atresia and cholestasis - Coordinator site

APHP. Université Paris-Saclay, Hôpital Bicêtre

Centre de référence des maladies inflammatoires des voies biliaires et des hépatites auto-immunes - Site coordonnateur Reference centre for inflammatory diseases of the biliary tract and autoimmune hepatitis - Coordinator site

AP-HP.Sorbonne Université - Hôpital Saint-Antoine

Centre de référence des maladies vasculaires du foie - Centre de compétence

GHU Paris-Sud - Hôpital Paul Brousse

Expert center on rare liver diseases

General University Hospital of Larissa

Centro di Riferimento per le malattie epatiche rare

Azienda Ospedaliera Universitaria "Federico II"

Centro di Riferimento per le malattie epatiche rare Centre of Expertise for rare hepatological diseases

IRCCS Azienda Ospedaliero Universitaria di Bologna, Policlinico di Sant'Orsola

Centro di Riferimento per le malattie epatiche rare Centre of Expertise for rare hepatological diseases

AOU Policlinico di Modena

Centro di Riferimento per la malattie epatiche rare Centre of Expertise for rare hepatological diseases

IRCCS Ospedale Pediatrico Bambino Gesù - SEDE GIANICOLO

Centro di Riferimento per le malattie epatiche rare Centre of Expertise for rare hepatic diseases

Policlinico Umberto I

Centro di Riferimento per le malattie epatiche rare Centre of Expertise for rare hepatic diseases

Fondazione Policlinico Universitario Agostino Gemelli IRCCS

Centro di Riferimento per le malattie epatiche rare Centre of Expertise for rare hepatological diseases

ASST Papa Giovanni XXIII

Centro di Riferimento per l'atresia biliare Centre of Expertise for isolated biliary atresia

ASST Spedali Civili di Brescia

Centro di Riferimento per le malattie epatiche rare Centre of Expertise for rare hepatic diseases

Fondazione IRCCS Ca' Granda - Ospedale Maggiore Policlinico

Centro di Riferimento per le malattie epatiche rare Centre of Expertise for rare hepatic diseases

ASST Santi Paolo e Carlo, Ospedale San Paolo - Università degli Studi di Milano

Centro di riferimento per le malattie autoimmuni del fegato Center of expertise for liver autoimmune diseases

Fondazione IRCCS San Gerardo

Centro di Riferimento per le malattie epatiche rare Center of Expertise for rare hepatic diseases

IRCCS Istituto Clinico Humanitas

Centro Esperto per le malattie epatiche rare Centre of Expertise for rare hepatological diseases

A.O.U. Città della Salute e della Scienza di Torino - Ospedale Regina Margherita

Centro di Riferimento per le malattie gastrointestinali ed epatiche rare Centre of expertise for rare gastroenterologic and hepatic diseases

Azienda Ospedaliera di Padova

LIETUVOS SVEIKATOS MOKSLU UNIVERSITETO LIGONINES VIESOSIOS ISTAIGOS KAUNO KLINIKU RETU VIRSKINIMO SISTEMOS IR KEPENU LIGU CENTRAS

LSMUH KK, Hospital of Lithuanian University of Health Sciences Kauno klinikos

Radboudumc Expertisecentrum voor Levercysten Radboudumc Center of Expertise for Liver Cysts

Radboudumc - Radboud universitair medisch centrum

UMCG Expertisecentrum voor Aangeboren Galwegafwijkingen UMCG Center of Expertise for Congenital Biliary Disorders

UMCG - Universitair Medisch Centrum Groningen

Amsterdam UMC Expertisecentrum voor Immuun Gemedieerde en Genetische Cholestase-syndromen Amsterdam UMC Expert Center for Immune-mediated and Genetic Cholestasis Syndromes

Amsterdam UMC

Erasmus MC Expertisecentrum voor Leverziekten Erasmus MC Center of Expertise for Liver Diseases

Erasmus MC - Erasmus Medisch Centrum

Erasmus MC Expertisecentrum voor Zwangerschapsziekten Erasmus MC Center of Expertise for Pregnancy-related Disorders

Erasmus MC - Erasmus Medisch Centrum

Klinika Gastrologii i Hepatologii

Instytut "Pomnik-Centrum Zdrowia Dziecka"

Centrum Eksperckie dla Rzadkich Chorob Watroby Center of Experise for Rare Liver Diseases

Samodzielny Publiczny Centralny Szpital Kliniczny w Warszawie

Centro de Referência de Cancro Hepato-Bilio-Pancreático - CHULC, EPE (ERN RARE-LIVER)

Unidade Local de Saúde de São José, EPE - ULSSJ, EPE [CHULC/HCC]

Expertteam för spädbarnskolestas, ERN Rare-Liver Expert team for cholestasis in infants, ERN Rare-Liver

Karolinska Universitetssjukhuset

Expertteam för sällsynta leversjukdomar, ERN Rare-Liver Expert team for rare liver diseases, ERN Rare-Liver

Karolinska Universitetssjukhuset

Sällsynta leversjukdomar, ERN Rare-Liver

Sahlgrenska Universitetssjuhuset

Consulta de enfermedades colestásicas crónicas Chronic cholestatic diseases clinic

Hospital Clínic de Barcelona

Consulta experta en la enfermedad de Wilson Expert center for Wilson disease

Hospital Clínic de Barcelona

Consulta experta en tumores raros hepáticos y del tracto biliar Expert center for rare hepatic and biliary tract tumor

Hospital Clínic de Barcelona

CSUR - Unidad de referencia nacional en enfermedad vascular hepática compleja en el adulto CSUR - National unit of expertise for complex hepatic vascular disease in adults

Hospital Clínic de Barcelona

CSUR - Unidad de referencia nacional en hepatopatías complejas pediátricas CSUR - National unit of expertise for complex pediatric liver diseases

Hospital Universitari Vall d'Hebron

CSUR - Unidad de referencia nacional en trasplante hepático pediátrico CSUR - National unit of expertise for pediatric liver transplantation

Hospital Universitari Vall d'Hebron

Consulta de enfermedades hepáticas raras Rare hepatic diseases clinic

Hospital Universitario La Paz

CSUR - Unidad de referencia nacional en trasplante hepático pediátrico CSUR - National unit of expertise for pediatric liver transplantation

Hospital Universitario La Paz

Center for Highly Specialized Care for Rare Hepatological Diseases

IKEM - Institute for clinical and experimental medicine

Centre of Expertise on Rare Hepatological Diseases

Semmelweis University

Centre of Expertise on Rare Hepatological Diseases

University of Debrecen

Zentrum für seltene Lebererkrankungen (Assoziiertes Nationales Zentrum im Europäischen Referenznetzwerk ERN RARE-LIVER) Center for rare liver diseases (Associated National Center in the European Reference Network ERN RARE-LIVER)

Universitätsklinikum - AKH Wien