Knowledge on rare diseases and orphan drugs

Expertisezentrum für Pädiatrische Onkologie (Vollmitglied im Europäischen Referenznetzwerk ERN PaedCan) Center of expertise for pediatric oncology (full member in the European Reference Network ERN PaedCan)

St. Anna Kinderspital

Equipe d'experts multidisciplinaire/Centre pour les maladies rares - Hôpital Universitaire de Bruxelles (H.U.B) Multidisciplinary expert team/Centre for rare diseases - Brussels University Hospital

Hôpital Universitaire de Bruxelles (H.U.B)

Centre expert en hémato-oncologie pédiatrique ERN PaedCan - HUDERF (Université Libre de Bruxelles) Pediatric hemato-oncology expert centre ERN PaedCan - HUDERF (Université Libre de Bruxelles)

Hôpital Universitaire de Bruxelles (H.U.B) - Site HUDERF

Centre expert en hémato-oncologie pédiatrique et transplantation de cellules souches - Cliniques universitaires Saint-Luc Expert centre for pediatric hemato-oncology and stem cell transplantation - Cliniques Universitaires Saint-Luc

Cliniques universitaires Saint-Luc - UCLouvain

Equipe d'experts multidisciplinaire/Centre pour les maladies rares - Cliniques Universitaires Saint-Luc Multidisciplinary expert team/Centre for rare diseases - Saint-Luc University Hospital

Cliniques universitaires Saint-Luc - UCLouvain

Centrum Medische Genetica Gent - UZ Gent General Genetic Counselling Clinic - Ghent University Hospital

Centrum Medische Genetica Gent - Universitair Ziekenhuis Gent

Multidisciplinair expertenteam/Centrum voor Zeldzame Ziekten - Universitair Ziekenhuis Gent Multidisciplinary expert team/Centre for Rare Diseases - University Hospital of Ghent

Universitair ziekenhuis Gent (UZ Gent)

Pediatrische hemato-oncologie en stamceltransplantatie expertisecentrum - UZ Gent Pediatric hemato-oncology and stem cell transplantation expert centre - Ghent University Hospital

Kinderziekenhuis Prinses Elisabeth - UZ Gent

Expertcentrum voor Kinderhematologie-Oncologie en Stamceltransplantatie - UZ Leuven Expert centre for Pediatric Hematology-Oncology and Stem Cell Transplantation - Leuven University Hospital

UZ Leuven - Campus Gasthuisberg

Multidisciplinair expertenteam/Centrum Zeldzame Ziekten - Universitair Ziekenhuis Leuven Multidisciplinary expert team/Centre for Rare Diseases - University Hospitals Leuven

UZ Leuven - Campus Gasthuisberg

Centrum vysoce specializovane pece pro vzacna detska hemato-onkologicka onemocnení Highly specialized care center for rare pediatric hemato-oncological diseases

University Hospital Motol

Centrum vysoce specializovane pece pro vzacna detska hemato-onkologicka onemocnení Highly specialized care center for rare pediatric hemato-oncological diseases

University hospital Brno

Expert Center on Paediatric Cancer

Rigshospitalet

Expert Center on Paediatric Cancer

Klinisk Genetisk Afdeling - Aarhus Universitetshospital - Skejby

Laste onko-hematoloogiahaiguste keskus Centre for Rare Paediatric Tumors (Associated National Centre in the ERN-Paed CAN)

Tallinn Children´s Hospital

Lapseea vähktõbede keskus Centre for Rare Paediatric Tumors (Associated National Centre in the ERN-Paed CAN)

Competence Centre for Rare Diseases - Tartu University Hospital

Multidistsiplinaarne harvikhaiguste kompetentsikeskus Multidisciplinary expert team / Competence Centre for Rare Diseases

Competence Centre for Rare Diseases - Tartu University Hospital

Expert Centre on Paediatric Cancer_Helsinki

HUS - Helsinki University Hospital

Expert Centre on Paediatric Cancer_Kuopio

Kuopio University Hospital

Expert Centre on Paediatric Cancer_Tampere

Tampere University Hospital, the Wellbeing Services County of Pirkanmaa

Expert Centre on Paediatric Cancer_Turku

Turku University Hospital

Consultation pour le diagnostic et le traitement des cancers de l'enfant et de l'adolescent Clinic for diagnosis and treatment of cancers in children and adolescents

GH Est des HCL - Institut d'Hématologie et d'Oncologie Pédiatrique (IHOPe)

Consultation pour le diagnostic et le traitement des cancers de l'enfant : Tumeurs du foie de l'enfant Clinic for diagnosis and treatment of pediatric cancers: Childhood liver tumors

APHP. Université Paris-Saclay, Hôpital Bicêtre

Chirurgie viscérale et urologique pédiatriques Pediatric visceral and urological surgery

Hôpital Necker-Enfants Malades

Consultation pour le diagnostic et le traitement des cancers de l'enfant : tumeurs cérébrales et rétinoblastome Clinic for diagnosis and treatment of pediatric cancers: brain tumors and retinoblastoma

CLCC Institut Curie

Consultation pour le diagnostic et le traitement des cancers et leucémies de l'enfant et l'adolescent Clinic for diagnosis and treatment of cancer and leukemia in children and adolescents

AP-HP.Sorbonne Université - Hôpital d'Enfants Armand-Trousseau

Consultation pour le diagnostic et le traitement des cancers de l'enfant et l'adolescent Clinic for diagnosis and treatment of cancers in children and adolescents

CLCC Institut Gustave Roussy

Exzellenzzentrum für myelodysplastische Syndrome und juvenile myelomonzytäre Leukämie MDS Center of Excellence and juvenile myelomonocytic leukemia clinic

Universitätsklinikum Freiburg

Spezialambulanz für Diamond-Blackfan-Anämie Blackfan-Diamond disease clinic

Kinder- und Jugendklinik am Universitätsklinikum Freiburg

ZSE Freiburg: Zentrum für Angeborene und Erworbene Blutkrankheiten Congenital and acquired hematological diseases

Universitätsklinikum Freiburg

Hämatologisch-onkologische Ambulanz (DKG e.V. zertifiziert) Haematology and oncology clinic

Klinikum Stuttgart - Standort Olgahospital

Spezialambulanz für Weichteil und Knochensarkome Soft tissue sarcoma and Osteosarcoma clinic

Klinikum Stuttgart - Standort Olgahospital

ZSE Tübingen: Zentrum für Seltene Pädiatrische Tumoren, Hämatologische und Immunologische Erkrankungen (ZSPT) Center for rare pediatric tumors, haematological and immunological diseases

ZSE Tübingen

ZSE Augsburg: Zentrum für solide (ZNS-) Tumoren und seltene hämatologische Erkrankungen des Kindesalters Solid (CNS) tumors and rare hematologic diseases clinic

Universitätsklinikum Augsburg

ZSE Erlangen: Zentrum für Seltene genetische Krebserkrankungen

ZSEER - Universitätsklinikum Erlangen

Chirurgisches Referenzzentrum für Neuro-, Hepatoblastome, Wilms-Tumore und andere seltene Tumorerkrankungen Surgery clinic with focus on Nephroblastoma, Hepatoblastoma, Neuroblastoma an other rare paediatric solid tumors

Kinderklinik und Kinderpoliklinik im Dr. von Haunerschen Kinderspital

Spezialsprechstunde für Hämatologie und Onkologie Haematology and oncology clinic

München Klinik Schwabing

ZSE Berlin: Fachzentrum für seltene pädiatrische-onkologische und hämatologische Erkrankungen (DKG e.V. zertifiziert) Oncological and haematological diseases clinic

Charité - Universitätsmedizin Berlin (CVK)

Kinderonkologisches Zentrum (DKG e.V. zertifiziertes Kinderonkologisches Zentrum) Haematology and oncology clinic

UKE - Universitätsklinikum Hamburg-Eppendorf

ZSE Frankfurt: Zentrum für Langerhans-Zell-Histiozytose Langerhans cell histiocytosis clinic

Universitätsklinikum Frankfurt

Pädiatrische Hämatologie und Onkologie Ambulanz Haematology and oncology clinic

Kinderklinik des UKGM am Standort Gießen

ZSE Hannover: Zentrum für Krebsprädisposition Genetic tumor clinic

Medizinische Hochschule Hannover

Kraniopharyngeom-Spezialsprechstunde

Klinikum Oldenburg AöR

ZSE Aachen: Behandlungs- und Forschungszentrum für seltene erbliche Tumorerkrankungen Rare hereditary tumour diseases clinic

Universitätsklinikum Aachen

Ambulanz für Hämatologie und Onkologie Haematology and oncology clinic

Universitäts-Kinderklinik Bonn

Kinderonkologisches Zentrum (DKG e.V. zertifiziertes Kinderonkologisches Zentrum) Haematology and oncology clinic

Klinikum Dortmund gGmbH - Klinikzentrum Mitte

ZSE Düsseldorf: Zentrum für angeborene Störungen des Knochenmarks und der Blutbildung (ZKMBB) Congenital Disorders of the Bone Marrow clinic

Universitätsklinikum Düsseldorf

Hämatologisch-onkologische Ambulanz mit Zentrum für seltene hämatologische Erkrankungen (DKG e.v. zertifiziertes Kinderonkologisches Zentrum) Haematological-oncological outpatient clinic with centre for rare haematological diseases

Universitätsklinikum Essen

Pädiatrische Hämatologie und Onkologie Ambulanz (DKG e.V. zertifiziertes Kinderonkologisches Zentrum) Haematology and oncology clinic

Universitätsklinikum Schleswig-Holstein - Campus Kiel

Expert Center on Paediatric Cancer

Aghia Sophia Children's Hospital

Expert Center on Paediatric Cancer

University of Pécs

Expert Center on Paediatric Cancer

Semmelweis University

Department of Paediatric Haematology and Oncology

Children's Health Ireland @ Crumlin

Expert Center on Paediatric Cancer

Children's Health Ireland @ Temple Street

Centro di Riferimento per i tumori pediatrici Centre of Expertise for pediatric tumors

IRCCS Ospedale Pediatrico Bambino Gesù - SEDE GIANICOLO

Centro di Riferimento per i tumori pediatrici del sistema nervoso centrale Centre of Expertise for pediatric tumors of the nervous system

IRCCS Ospedale Pediatrico Bambino Gesù - SEDE GIANICOLO

Centro di Riferimento per i tumori rari Centre of Expertise for rare tumors

Fondazione Policlinico Universitario Agostino Gemelli IRCCS

Centro Esperto per i tumori rari pediatrici Specialized clinic for rare pediatric tumors

IRCCS Istituto G. Gaslini - Ospedale Pediatrico

Centro di Riferimento per i tumori rari Expert Center on rare tumors

Fondazione IRCCS Istituto Nazionale dei Tumori

Centro Esperto per i tumori rari del sistema nervoso centrale Centre of Expertise for rare nervous system tumors

Fondazione IRCCS Istituto Neurologico "Carlo Besta"

Centro di Riferimento per i tumori rari pediatrici Centre of Expertise for rare pediatric tumors

Fondazione IRCCS San Gerardo

Centro di Riferimento per le sindromi mielodisplastiche Centre of Expertise for myelodysplastic syndromes

Fondazione IRCCS Policlinico San Matteo

Centro di Riferimento per i tumori rari pediatrici Centre of Expertise for rare pediatric tumors

A.O.U. Città della Salute e della Scienza di Torino - Ospedale Regina Margherita

Centro di Riferimento per i tumori rari pediatrici Centre of Expertise for rare pediatric tumors

Azienda Ospedaliera Universitaria Anna Meyer I.R.C.C.S.

Centro di Riferimento per l'istiocitosi a cellule di Langerhans Expert Centre for Langerhans cells histiocytosis

Azienda Ospedaliera Universitaria Anna Meyer I.R.C.C.S.

Centro Esperto per la sindrome emofagocitica Expert Centre for hemophagocytic syndrome

Azienda Ospedaliera Universitaria Anna Meyer I.R.C.C.S.

Centro di Riferimento per la dismorfologia Centre of Expertise for Dysmorphology

Azienda Ospedaliero Universitaria Senese - Policlinico Santa Maria alle Scotte

Consulenza Oncogenetica Oncogenetics clinic

Università degli Studi di Perugia - Ospedale S. Maria della Misericordia

Centro di Riferimento per i tumori rari pediatrici Centre of Expertise for rare pediatric tumors

Azienda Ospedaliera di Padova

Expert Center on Paediatric Cancer

Children's Clinical University Hospital

Vaiku retu ligu koordinavimo centras Coordinating Centre of Pediatric Rare Diseases

Vilnius University Hospital Santariskiu Klinikos - Childrens Hospital

Amsterdam UMC Expertisecentrum voor Retinoblastoom Amsterdam UMC Center of Excellence for Retinoblastoma

Amsterdam UMC

Prinses Máxima Centrum voor Kinderoncologie Princess Máxima Center for Rare Pediatric Tumors

Prinses Máxima Centrum

Nasjonal kompetansetjeneste for solide svulster hos barn Norwegian National Advisory Unit on Solid Tumors in Children

Oslo University Hospital

Expert Center on Paediatric Cancer

Uniwersyteckie Centrum Kliniczne

Expert Center on Paediatric Cancer

Uniwersytecki Szpital Dzieciecy w Krakowie

Klinika Rzadkich Chorób Nowotworowych i Hematologicznych dla Dzieci Rare pediatric cancers and hematologic disorders clinic

Uniwersytecki Szpital Dzieciecy w Lublinie

Klinika Rzadkich Chorób Onkologicznych Expert Center on Paediatric Cancer

Instytut "Pomnik-Centrum Zdrowia Dziecka"

Expert Center on Paediatric Cancer

Instytut Matki i Dziecka

Expert Center on Paediatric Cancer

T. Marciniak Lower Silesian Specialist Hospital - Emergency Medicine Centre

Expert Center on Paediatric Cancer - IPO Porto, EPE (ERN PaedCAN)

Instituto Português de Oncologia do Porto Francisco Gentil, EPE - IPO Porto, EPE

Expert Center on Paediatric Cancer

DebRA SR

Expert Center on Paediatric Cancer

University Medical Center Ljubljana

CSUR - Unidad de referencia nacional en neuroblastomas CSUR - National unit of expertise for neuroblastoma

Hospital Universitario Virgen del Rocío

CSUR - Unidad de referencia nacional en sarcomas en la infancia CSUR - National unit of expertise for pediatric sarcoma

Hospital Universitario Virgen del Rocío

CSUR - Unidad de referencia nacional en tumores intraoculares en la infancia CSUR - National unit of expertise for intraocular tumors in childhood

Hospital Universitario Virgen Macarena

Consulta de tumores orbitarios infantiles Pediatric orbital tumors clinic

Hospital Universitari Vall d'Hebron

CSUR - Unidad de referencia nacional en neuroblastomas CSUR - National unit of expertise for neuroblastoma

Hospital Universitari Vall d'Hebron

CSUR - Unidad de referencia nacional en sarcomas en la infancia CSUR - National unit of expertise for pediatric sarcoma

Hospital Universitari Vall d'Hebron

Consulta de oncología pediátrica Pediatric oncology clinic

Hospital Sant Joan de Déu Barcelona

CSUR - Unidad de referencia nacional en tumores intraoculares en la infancia CSUR - National unit of expertise for intraocular tumors in childhood

Hospital Sant Joan de Déu Barcelona

CSUR - Unidad de referencia nacional en neuroblastomas CSUR - National unit of expertise for neuroblastoma

Hospital Universitari i Politècnic La Fe

CSUR - Unidad de referencia nacional en sarcomas en la infancia CSUR - National unit of expertise for pediatric sarcoma

Hospital Universitari i Politècnic La Fe

Unidad de referencia regional en oncología pediátrica Regional unit of expertise for pediatric oncology

Hospital Universitari i Politècnic La Fe

CSUR - Unidad de referencia nacional en neurocirugía pediátrica compleja CSUR - National unit of expertise of complex pediatric neurosurgery

Hospital Universitario La Paz

CSUR - Unidad de referencia nacional en sarcomas en la infancia CSUR - National unit of expertise for pediatric sarcoma

Hospital Universitario La Paz

CSUR - Unidad de referencia nacional en trasplante de progenitores hematopoyéticos alogénico infantil CSUR - National unit of expertise for pediatric allogenic hematopoietic stem cell transplantation

Hospital Universitario La Paz

CSUR - Unidad de referencia nacional en trasplante hepático pediátrico CSUR - National unit of expertise for pediatric liver transplantation

Hospital Universitario La Paz

CSUR - Unidad de referencia nacional en trasplante renal pediátrico CSUR - National unit of expertise for pediatric kidney transplantation

Hospital Universitario La Paz

CSUR - Unidad de referencia nacional en tumores intraoculares en la infancia CSUR - National unit of expertise for intraocular tumors in childhood

Hospital Universitario La Paz

CSUR - Unidad de referencia nacional en tumores orbitarios infantiles CSUR - National unit of expertise for pediatric orbital tumors

Hospital Universitario La Paz

Team för pediatrisk cancer, ERN PaedCan

Skånes Universitetssjukhus

Expertteam för Langerhans cellhistiocytos, ERN PaedCan Expert team for Langerhans cell histiocytosis, ERN PaedCan

Karolinska Universitetssjukhuset

Expertteam för solida extrakraniella tumörer, ERN PaedCan

Karolinska Universitetssjukhuset

Team för pediatrisk cancer, ERN PaedCan Team for paediatric cancer, ERN PaedCan

Sahlgrenska Universitetssjuhuset