Wissen über seltene Krankheiten und Orphan Drugs

Expertisecentrum voor aangeboren hartziekten - UZA Expert Center on Congenital Heart Diseases - Antwerp University Hospital

Antwerp University Hospital - UZA

Multidisciplinair expertenteam/Centrum Zeldzame Ziekten - Universitair Ziekenhuis Antwerpen Multidisciplinary expert team/Centre for Rare Diseases - University Hospital of Antwerp

Antwerp University Hospital - UZA

Centrum voor zeldzame en complexe hartziekten (afdeling kinderen) - UZ Brussel Centre for rare and complex cardiac diseases (children section) - UZ Brussel

Universitair Ziekenhuis Brussel

Centrum voor zeldzame en complexe hartziekten (afdeling volwassenen) - UZ Brussel Centre for rare and complex cardiac diseases (adults section) - UZ Brussel

Universitair Ziekenhuis Brussel

Multidisciplinair expertenteam/Centrum voor Zeldzame Ziekten - Universitair Ziekenhuis Brussel Multidisciplinary expert team/Centre for Rare Diseases - University Hospital of Brussels

Universitair Ziekenhuis Brussel

Expertisecentrum voor Erfelijke Hartziekten - UZ Leuven Expert Centre for Hereditary Heart Diseases - UZ Leuven

UZ Leuven - Campus Gasthuisberg

Multidisciplinair expertenteam/Centrum Zeldzame Ziekten - Universitair Ziekenhuis Leuven Multidisciplinary expert team/Centre for Rare Diseases - University Hospitals Leuven

UZ Leuven - Campus Gasthuisberg

ZSE München (LMU): Spezialambulanz für Diagnostik und Therapie angeborener Arrhythmiesyndrome Hereditary cardiac rythm syndromes clinic

Kinderklinik und Kinderpoliklinik im Dr. von Haunerschen Kinderspital

Spezialambulanz für Patienten mit genetischen Herzerkrankungen Genetic cardiac diseases clinic

Universitätsklinikum Münster

Centre for rare and complex heart diseases

Rigshospitalet

Expert Center on Rare cardiomiopathies

Aarhus University Hospital - Skejby

Kaasasündinud südamehaiguste keskus Expert Centre for Congenital Heart Diseases

Competence Centre for Rare Diseases - Tartu University Hospital

Multidistsiplinaarne harvikhaiguste kompetentsikeskus Multidisciplinary expert team / Competence Centre for Rare Diseases

Competence Centre for Rare Diseases - Tartu University Hospital

Centre for Rare and Complex Heart Diseases

HUS - Helsinki University Hospital

Centre de référence des troubles du rythme cardiaque héréditaires ou rares du Sud/Sud-Est - Site coordonnateur Reference centre for rare or genetic cardiac rhythm diseases Sud/Sud-Est - Coordinator site

CHU de Lyon HCL - GH Est-Hôpital Louis Pradel

Centre de référence des cardiomyopathies et des troubles du rythme cardiaque héréditaires ou rares - Site coordonnateur Reference centre for cardiomyopathies and cardiac rhythm diseases - Coordinator site

AP-HP.Sorbonne Université - Hôpital de la Pitié-Salpêtrière

Centre de référence des troubles du rythme cardiaque héréditaires ou rares de l'Ouest - Site constitutif Reference centre for rare or genetic cardiac rhythm diseases Ouest - Constitutive site

CHU de Bordeaux-GH Sud - Hôpital Haut-Lévêque

Centre de référence des troubles du rythme cardiaque héréditaires ou rares de l'Ouest - Site coordonnateur Reference centre for rare or genetic cardiac rhythm diseases Ouest - Coordinator site

CHU de Nantes - Hôpital Nord Guillaume et René Laënnec

Adult Congenital Heart Disease (ACHD) Service

Mater Misericordiae Hospital

Centre for Cardiac Risk in Younger Persons

Tallaght University Hospital

Inherited Cardiac Conditions Clinic

Children's Health Ireland @ Crumlin

MMUH Family Heart Screening Clinic

Mater Misericordiae Hospital

Centro di Riferimento per le cardiopatie rare Centre of Expertise for rare cardiac diseases

Azienda Ospedaliera dei Colli - Ospedale Monaldi

Centro di Riferimento per le cardiopatie rare Expert Center for rare cardiac diseases

IRCCS Azienda Ospedaliero Universitaria di Bologna, Policlinico di Sant'Orsola

Centro di Esperto per le cardiomiopatie Centre of Expertise for cardiomiopathies

Azienda Sanitaria Universitaria Integrata di Trieste

Centro di Riferimento per le cardiopatie rare Centre of Expertise for rare cardiac diseases

IRCCS Ospedale Pediatrico Bambino Gesù - SEDE PALIDORO

Centro di Riferimento per le malattie cardiache di origine genetica Centre of Expertise for rare cardiogenetic disorders

IRCCS Ospedale Pediatrico Bambino Gesù - SEDE SAN PAOLO

Centro Esperto per le malattie cardiache rare Centre of Expertise for rare cardiac diseases

Fondazione Policlinico Universitario Agostino Gemelli IRCCS

Centro Esperto per le malattie genetiche del ritmo cardiaco Specialized clinic for genetic cardiac rhythm disease

Auxologico Pier Lombardo

Consulenza Genetica e Specialistica per cardiomiopatie ereditarie, mitocondriopatie, sindrome di Marfan e Loeys-Dietz Hereditary cardiomyopathies, mitochondriopathies and Marfan and Loeys-Dietz syndromes specialized and genetics clinic

Fondazione IRCCS Policlinico San Matteo

Consulenza Specialistica per le malattie aritmogene e le cardiomiopatie ereditarie Specialized clinic for inherited arrhythmias and cardiomyopathies

Istituti Clinici Scientifici Maugeri IRCCS

Centro Esperto per le cardiopatie rare Expert Center for rare cardiac diseases

IRCCS Policlinico San Donato

Centro di Riferimento per le cardiopatie rare Centre of Expertise for rare cardiac diseases

Azienda Ospedaliera di Padova

Expert Center on Congenital Heart Diseases

Zagreb Clinical Hospital Center

Maastricht UMC+ Expertisecentrum voor Cardiogenetica Maastricht UMC+ Center of Expertise for Cardiogenetics

Maastricht UMC+

Amsterdam UMC Expertisecentrum voor Zeldzame Hartaandoeningen Amsterdam UMC Centre of Excellence for Rare Cardiac Diseases

Amsterdam UMC

UMC Utrecht Expertisecentrum voor Erfelijke Hart- en Vaatziekten UMC Utrecht Center of Expertise for Hereditary Cardiovascular Diseases

UMC Utrecht - Universitair Medisch Centrum Utrecht

Erasmus MC Expertisecentrum voor Aangeboren Hartafwijkingen Erasmus MC Center of Expertise for Congenital Heart Diseases

Erasmus MC - Erasmus Medisch Centrum

Erasmus MC Expertisecentrum voor Erfelijke Hart- en Vaatziekten Erasmus MC Center of Expertise for Inherited Cardiovascular Diseases

Erasmus MC - Erasmus Medisch Centrum

Expert Center on Congenital Heart Diseases

Gornoslaskie Centrum Medyczne

Centro de Referência de Cardiopatias Congénitas - CHUSJ, EPE (ERN GUARD-HEART)

Unidade Local de Saúde de São João, EPE - ULSSJ, EPE [CHUSJ]

Centro de Referência de Cardiopatias Congénitas - CHLO (ERN GUARD-HEART) Reference Centre on Congenital Heart Diseases - CHLO (ERN GUARD-HEART)

Unidade Local de Saúde de Lisboa Ocidental, EPE - ULSLO, EPE [CHLO/HSC]

Centro de Referência de Cardiopatias Congénitas - CHULC, EPE (ERN GUARD-HEART)

Unidade Local de Saúde de São José, EPE - ULSSJ, EPE [CHULC/HSM]

Expert Center on Congenital Heart Diseases

Institutul de urgenta pentru boli cardiovasculare "Prof. Dr. C.C. Iliescu"

Centrum för kardiovaskulär genetik (CKG), ERN Guard-Heart

Norrlands Universitetssjukhus

CSUR - Unidad de referencia nacional en cardiopatía congénita en adultos CSUR - National unit of expertise for congenital heart disease in adults

Hospital Universitario Virgen del Rocío

CSUR - Unidad de referencia nacional en cardiopatía congénita en adultos CSUR - National unit of expertise for congenital heart disease in adults

Hospital Universitari Vall d'Hebron

CSUR - Unidad de referencia nacional en cardiopatías familiares CSUR - National unit of expertise for familial cardiopathies

Hospital Clínic de Barcelona

CSUR - Unidad de referencia nacional en cardiopatías familiares CSUR - National unit of expertise for familial cardiopathies

Hospital Universitari Vall d'Hebron

CSUR - Unidad de referencia nacional en arritmias en edad pediátrica CSUR - National unit of expertise for pediatric arrhythmias

Hospital Sant Joan de Déu Barcelona

CSUR - Unidad de referencia nacional en asistencia integral del neonato con cardiopatía congénita y del niño con cardiopatía congénita compleja CSUR - National unit of expertise for comprehensive care of the neonate with congenital heart disease and the child with complex congenital heart disease

Hospital Sant Joan de Déu Barcelona

CSUR - Unidad de referencia nacional en cardiopatías familiares CSUR - National unit of expertise for familial cardiopathies

Hospital Sant Joan de Déu Barcelona

CSUR - Unidad de referencia nacional en cardiopatías familiares CSUR - National unit of expertise for familial cardiopathies

Hospital General Universitario Gregorio Marañón

CSUR - Unidad de referencia nacional en cardiopatías familiares CSUR - National unit of expertise for familial cardiopathies

Hospital Universitario Puerta de Hierro - Majadahonda

CSUR - Unidad de referencia nacional en cardiopatías familiares CSUR - National unit of expertise for inherited cardiac diseases

Hospital Clínico Universitario Virgen de la Arrixaca

Center for Inherited Cardiovascular Diseases

IKEM - Institute for clinical and experimental medicine

Centrum vysoce specializovane pece pro vzacna onemocnení srdce Highly specialized care center for rare heart diseases

University Hospital Motol

Expert Center on Congenital Heart Diseases

University of Szeged Albert Szent-Györgyi Medical School

Kardiomyopathieprogramm Innsbruck (Assoziiertes Nationales Zentrum im Europäischen Referenznetzwerk ERN GUARD-Heart) Cardiomyopathy Program Innsbruck (Associated National Center in the European Reference Network ERN GUARD-Heart)

Medizinische Universität Innsbruck

Kinderherzzentrum Wien (Assoziiertes Nationales Zentrum im Europäischen Referenznetzwerk ERN GUARD-Heart) Pediatric Heart Center Vienna (Associated National Center in the European Reference Network ERN GUARD-Heart)

Universitätsklinikum - AKH Wien