Wiedza o chorobach rzadkich i lekach sierocych

Expertisezentrum für Lippen-Kiefer-Gaumenspalten und Kraniofaziale Anomalien (Vollmitglied im Europäischen Referenznetzwerk ERN CRANIO) Center of expertise for cleft lip/palate and craniofacial anomalies (full member in the European Reference Network ERN CRANIO)

Universitätsklinikum der Paracelsus Medizinischen Privatuniversität

Expertisecentrum voor erfelijke slechthorendheid_UZ Antwerpen Expert center on genetic deafness_Antwerp University Hospital

Antwerp University Hospital - UZA

Multidisciplinair expertenteam/Centrum Zeldzame Ziekten - Universitair Ziekenhuis Antwerpen Multidisciplinary expert team/Centre for Rare Diseases - University Hospital of Antwerp

Antwerp University Hospital - UZA

Expertisecentrum voor zeldzame craniofaciale aandoeningen_UZ Gent Expert center on rare craniofacial disorders_Ghent University Hospital

Universitair ziekenhuis Gent (UZ Gent)

Multidisciplinair expertenteam/Centrum voor Zeldzame Ziekten - Universitair Ziekenhuis Gent Multidisciplinary expert team/Centre for Rare Diseases - University Hospital of Ghent

Universitair ziekenhuis Gent (UZ Gent)

Expertisecentrum voor zeldzame craniofaciale aandoeningen_UZ Leuven Expert center on rare craniofacial disorders_University Hospital Leuven

UZ Leuven - Campus Gasthuisberg

Multidisciplinair expertenteam/Centrum Zeldzame Ziekten - Universitair Ziekenhuis Leuven Multidisciplinary expert team/Centre for Rare Diseases - University Hospitals Leuven

UZ Leuven - Campus Gasthuisberg

Centrum vysoce specializovane pece pro vzacne oblicejove anomalie a vzacna onemocnení usní, nosní, krení Highly specialized care center for rare facial anomalies and rare ear, nose, throat diseases

University Hospital Motol

Cleft Palate and Craniofacial Centre

HUS - Helsinki University Hospital

Centre de référence des malformations et maladies congénitales du cervelet - Site constitutif Reference centre for congenital malformations and diseases of the cerebellum - Constitutive site

CHU de Lyon HCL - GH Est-Hôpital Femme Mère Enfant

Centre de référence des maladies rares orales et dentaires - Site coordonnateur Reference centre for odontologic manifestations of rare diseases - Coordinator site

CHU de Strasbourg - Hôpital Civil

Centre de référence des craniosténoses et malformations cranio-faciales - Centre de compétence Reference centre for craniosynostosis and craniofacial malformations - Competence centre

CHU de Lille - Hôpital Roger Salengro

Centre de référence des craniosténoses et malformations cranio-faciales - Centre de compétence Reference centre for craniosynostosis and craniofacial malformations - Competence centre

Clinique Marcel Sembat

Centre de référence des malformations ORL rares - Site coordonnateur Reference centre for rare ENT malformations - Coordinator site

Hôpital Necker-Enfants Malades

CSUR - Unidad de referencia nacional en neurocirugía pediátrica compleja CSUR - National unit of expertise of complex pediatric neurosurgery

Hospital Universitari Vall d'Hebron

CSUR - Unidad de referencia nacional en neurocirugía pediátrica compleja CSUR - National unit of expertise of complex pediatric neurosurgery

Hospital Sant Joan de Déu Barcelona

CSUR - Unidad de referencia nacional en neurocirugía pediátrica compleja CSUR - National unit of expertice of complex pediatric neurosurgery

Hospital Universitario 12 de Octubre

Radboudumc Expertisecentrum voor Aangeboren Tandafwijkingen Radboudumc Center of Expertise for Congenital Disorders of Dental Development

Radboudumc - Radboud universitair medisch centrum

Radboudumc Expertisecentrum voor Craniofaciale Aandoeningen Radboudumc Center of Expertise for Craniofacial Disorders

Radboudumc - Radboud universitair medisch centrum

Radboudumc Expertisecentrum voor Erfelijke slechthorendheid Radboudumc Center of Expertise Hearing & Genes

Radboudumc - Radboud universitair medisch centrum

Radboudumc Expertisecentrum voor Schisis Radboudumc Center of Expertise for Cleft Lip & Palate and Orofacial Disorders

Radboudumc - Radboud universitair medisch centrum

Amsterdam UMC Expertisecentrum voor Schisis, Craniofaciale en Luchtwegaandoeningen Amsterdam UMC Expert Center for Cleft, Craniofacial and Airway Disorders

Amsterdam UMC

UMC Utrecht Expertisecentrum voor Aangeboren Gelaats- en Tandafwijkingen UMC Utrecht Center of Expertise for Congenital Orofacial and Dental Anomalies

UMC Utrecht - Universitair Medisch Centrum Utrecht

Erasmus MC Expertisecentrum voor Craniofaciale Aandoeningen Erasmus MC Center of Expertise for Craniofacial Anomalies

Erasmus MC - Erasmus Medisch Centrum

Erasmus MC Expertisecentrum voor Laryngotracheale Stenose Erasmus MC Center of Expertise for Laryngotracheal Stenosis

Erasmus MC - Erasmus Medisch Centrum

Erasmus MC Expertisecentrum voor Oligodontie Erasmus MC Center of Expertise for Oligodontia

Erasmus MC - Erasmus Medisch Centrum

Erasmus MC Expertisecentrum voor Schisis Erasmus MC Center of Expertise for Cleft Palate

Erasmus MC - Erasmus Medisch Centrum

Cleft Lip and Palate Services

Cleft Lip and Palate Services

National Paediatric Craniofacial Centre

Children's Health Ireland @ Temple Street

Orthodontic and Prosthodontic Unit

St James's Hospital

Rare Hearing Disorders and Hearing Implantation Center Rare Hearing Disorders and Hearing Implantation Center

Vilnius University Hospital Santariskiu Klinikos

ZSE Tübingen: Zentrum für Lippen-Kiefer-Gaumenspalten und kraniofaziale Fehlbildungen (ZLKGKF) Craniofacial malformations clinic

ZSE Tübingen

Interdisziplinäres Zentrum für kraniofaziale Fehlbildungen Interdisciplinary craniofacial malformations clinic

Charité - Universitätsmedizin Berlin (CVK)

Flerregional behandlingstjeneste for leppe-kjeve-gane spalte, Haukeland universitetssykehus

Haukeland University Hospital

Nasjonal behandlingstjeneste for kirurgisk behandling ved kraniofaciale misdannelser Norwegian National Unit for Craniofacial Surgery

Oslo University Hospital

Expert Centre on Craniofacial Malformations - CHULN, EPE (ERN Cranio) Expert Centre on Craniofacial Malformations - CHULN, EPE (ERN Cranio)

Unidade Local de Saúde de Santa Maria, EPE - ULSSM, EPE [CHULN]

Expertteam för sällsynta kraniofaciala diagnoser - LKG-teamet, ERN Cranio, ERN Vascern Expert team for rare craniofacial disorders - LKG-team, ERN Cranio, ERN Vascern

Karolinska Universitetssjukhuset

Expertteam för sällsynta kraniofaciala diagnoser - Uppsalas Kraniofaciala Center, ERN Cranio Expert team for rare craniofacial disorders - Uppsala Craniofacial Center, ERN Cranio

Akademiska Sjukhuset

Kraniofaciala teamet, ERN Cranio Craniofacial team, ERN Cranio

Sahlgrenska Universitetssjuhuset

Ritka Betegségek Nemzeti Koordinációs Központja National Rare Disease Research Coordination Centre - Genetic counselling clinic

Clinical Center - University of Pécs

Expert Center on Craniofacial Disorders

University of Szeged Albert Szent-Györgyi Medical School

Centro di Riferimento per le malformazioni cranio-facciali rare Centre of Expertise for rare craniofacial anomalies

Fondazione Policlinico Universitario Agostino Gemelli IRCCS

Centro di riferimento per le anomalie cranio-facciali rare Centre of Expertise for rare craniofacial anomalies

Fondazione IRCCS Istituto Neurologico "Carlo Besta"

Centro di riferimento per le anomalie maxillo-facciali rare Centre of expertise for rare maxillo-facial anomalies

ASST Santi Paolo e Carlo, Ospedale San Paolo - Università degli Studi di Milano

Centro di riferimento per le anomalie cranio-facciali rare Centre of Expertise for rare craniofacial anomalies

Fondazione IRCCS San Gerardo

Centro di Riferimento per le malattie neurologiche pediatriche rare e per la craniosinostosi Centre of Expertise for rare pediatric neurologic diseases and for craniosynostosis

Azienda Ospedaliera Universitaria Anna Meyer I.R.C.C.S.

Centro di Riferimento per le malformazioni cranio-facciali rare Centre of Expertise for rare craniofacial anomalies

Azienda Ospedaliera di Padova

Centro di Riferimento per le malformazioni maxillo-facciali rare Centre of Expertise for rare maxillo-facial malformations

Azienda ULSS8 Berica