Conhecimento sobre doenças raras e medicamentos órfãos

ZSE Tübingen: Zentrum für Lippen-Kiefer-Gaumenspalten und kraniofaziale Fehlbildungen (ZLKGKF) Craniofacial malformations clinic

ZSE Tübingen

Interdisziplinäres Zentrum für kraniofaziale Fehlbildungen Interdisciplinary craniofacial malformations clinic

Charité - Universitätsmedizin Berlin (CVK)

Expertisezentrum für Lippen-Kiefer-Gaumenspalten und Kraniofaziale Anomalien (Vollmitglied im Europäischen Referenznetzwerk ERN CRANIO) Center of expertise for cleft lip/palate and craniofacial anomalies (full member in the European Reference Network ERN CRANIO)

Universitätsklinikum der Paracelsus Medizinischen Privatuniversität

Expertisecentrum voor erfelijke slechthorendheid_UZ Antwerpen Expert center on genetic deafness_Antwerp University Hospital

Antwerp University Hospital - UZA

Multidisciplinair expertenteam/Centrum Zeldzame Ziekten - Universitair Ziekenhuis Antwerpen Multidisciplinary expert team/Centre for Rare Diseases - University Hospital of Antwerp

Antwerp University Hospital - UZA

Expertisecentrum voor zeldzame craniofaciale aandoeningen_UZ Gent Expert center on rare craniofacial disorders_Ghent University Hospital

Universitair ziekenhuis Gent (UZ Gent)

Multidisciplinair expertenteam/Centrum voor Zeldzame Ziekten - Universitair Ziekenhuis Gent Multidisciplinary expert team/Centre for Rare Diseases - University Hospital of Ghent

Universitair ziekenhuis Gent (UZ Gent)

Expertisecentrum voor zeldzame craniofaciale aandoeningen_UZ Leuven Expert center on rare craniofacial disorders_University Hospital Leuven

UZ Leuven - Campus Gasthuisberg

Multidisciplinair expertenteam/Centrum Zeldzame Ziekten - Universitair Ziekenhuis Leuven Multidisciplinary expert team/Centre for Rare Diseases - University Hospitals Leuven

UZ Leuven - Campus Gasthuisberg

CSUR - Unidad de referencia nacional en neurocirugía pediátrica compleja CSUR - National unit of expertise of complex pediatric neurosurgery

Hospital Universitari Vall d'Hebron

CSUR - Unidad de referencia nacional en neurocirugía pediátrica compleja CSUR - National unit of expertise of complex pediatric neurosurgery

Hospital Sant Joan de Déu Barcelona

CSUR - Unidad de referencia nacional en neurocirugía pediátrica compleja CSUR - National unit of expertice of complex pediatric neurosurgery

Hospital Universitario 12 de Octubre

Cleft Palate and Craniofacial Centre

HUS - Helsinki University Hospital

Centre de référence des malformations et maladies congénitales du cervelet - Site constitutif Reference centre for congenital malformations and diseases of the cerebellum - Constitutive site

CHU de Lyon HCL - GH Est-Hôpital Femme Mère Enfant

Centre de référence des maladies rares orales et dentaires - Site coordonnateur Reference centre for odontologic manifestations of rare diseases - Coordinator site

CHU de Strasbourg - Hôpital Civil

Centre de référence des craniosténoses et malformations cranio-faciales - Centre de compétence Reference centre for craniosynostosis and craniofacial malformations - Competence centre

CHU de Lille - Hôpital Roger Salengro

Centre de référence des craniosténoses et malformations cranio-faciales - Centre de compétence Reference centre for craniosynostosis and craniofacial malformations - Competence centre

Clinique Marcel Sembat

Centre de référence des malformations ORL rares - Site coordonnateur Reference centre for rare ENT malformations - Coordinator site

Hôpital Necker-Enfants Malades

Ritka Betegségek Nemzeti Koordinációs Központja National Rare Disease Research Coordination Centre - Genetic counselling clinic

Clinical Center - University of Pécs

Expert Center on Craniofacial Disorders

University of Szeged Albert Szent-Györgyi Medical School

Cleft Lip and Palate Services

Cleft Lip and Palate Services

National Paediatric Craniofacial Centre

Children's Health Ireland @ Temple Street

Orthodontic and Prosthodontic Unit

St James's Hospital

Centro di Riferimento per le malformazioni cranio-facciali rare Centre of Expertise for rare craniofacial anomalies

Fondazione Policlinico Universitario Agostino Gemelli IRCCS

Centro di riferimento per le anomalie cranio-facciali rare Centre of Expertise for rare craniofacial anomalies

Fondazione IRCCS Istituto Neurologico "Carlo Besta"

Centro di riferimento per le anomalie maxillo-facciali rare Centre of expertise for rare maxillo-facial anomalies

ASST Santi Paolo e Carlo, Ospedale San Paolo - Università degli Studi di Milano

Centro di riferimento per le anomalie cranio-facciali rare Centre of Expertise for rare craniofacial anomalies

Fondazione IRCCS San Gerardo

Centro di Riferimento per le malattie neurologiche pediatriche rare e per la craniosinostosi Centre of Expertise for rare pediatric neurologic diseases and for craniosynostosis

Azienda Ospedaliera Universitaria Anna Meyer I.R.C.C.S.

Centro di Riferimento per le malformazioni cranio-facciali rare Centre of Expertise for rare craniofacial anomalies

Azienda Ospedaliera di Padova

Centro di Riferimento per le malformazioni maxillo-facciali rare Centre of Expertise for rare maxillo-facial malformations

Azienda ULSS8 Berica

Rare Hearing Disorders and Hearing Implantation Center Rare Hearing Disorders and Hearing Implantation Center

Vilnius University Hospital Santariskiu Klinikos

Flerregional behandlingstjeneste for leppe-kjeve-gane spalte, Haukeland universitetssykehus

Haukeland University Hospital

Nasjonal behandlingstjeneste for kirurgisk behandling ved kraniofaciale misdannelser Norwegian National Unit for Craniofacial Surgery

Oslo University Hospital

Radboudumc Expertisecentrum voor Aangeboren Tandafwijkingen Radboudumc Center of Expertise for Congenital Disorders of Dental Development

Radboudumc - Radboud universitair medisch centrum

Radboudumc Expertisecentrum voor Craniofaciale Aandoeningen Radboudumc Center of Expertise for Craniofacial Disorders

Radboudumc - Radboud universitair medisch centrum

Radboudumc Expertisecentrum voor Erfelijke slechthorendheid Radboudumc Center of Expertise Hearing & Genes

Radboudumc - Radboud universitair medisch centrum

Radboudumc Expertisecentrum voor Schisis Radboudumc Center of Expertise for Cleft Lip & Palate and Orofacial Disorders

Radboudumc - Radboud universitair medisch centrum

Amsterdam UMC Expertisecentrum voor Schisis, Craniofaciale en Luchtwegaandoeningen Amsterdam UMC Expert Center for Cleft, Craniofacial and Airway Disorders

Amsterdam UMC

UMC Utrecht Expertisecentrum voor Aangeboren Gelaats- en Tandafwijkingen UMC Utrecht Center of Expertise for Congenital Orofacial and Dental Anomalies

UMC Utrecht - Universitair Medisch Centrum Utrecht

Erasmus MC Expertisecentrum voor Craniofaciale Aandoeningen Erasmus MC Center of Expertise for Craniofacial Anomalies

Erasmus MC - Erasmus Medisch Centrum

Erasmus MC Expertisecentrum voor Laryngotracheale Stenose Erasmus MC Center of Expertise for Laryngotracheal Stenosis

Erasmus MC - Erasmus Medisch Centrum

Erasmus MC Expertisecentrum voor Oligodontie Erasmus MC Center of Expertise for Oligodontia

Erasmus MC - Erasmus Medisch Centrum

Erasmus MC Expertisecentrum voor Schisis Erasmus MC Center of Expertise for Cleft Palate

Erasmus MC - Erasmus Medisch Centrum

Expert Centre on Craniofacial Malformations - CHULN, EPE (ERN Cranio) Expert Centre on Craniofacial Malformations - CHULN, EPE (ERN Cranio)

Unidade Local de Saúde de Santa Maria, EPE - ULSSM, EPE [CHULN]

Centrum vysoce specializovane pece pro vzacne oblicejove anomalie a vzacna onemocnení usní, nosní, krení Highly specialized care center for rare facial anomalies and rare ear, nose, throat diseases

University Hospital Motol

Expertteam för sällsynta kraniofaciala diagnoser - LKG-teamet, ERN Cranio, ERN Vascern Expert team for rare craniofacial disorders - LKG-team, ERN Cranio, ERN Vascern

Karolinska Universitetssjukhuset

Expertteam för sällsynta kraniofaciala diagnoser - Uppsalas Kraniofaciala Center, ERN Cranio Expert team for rare craniofacial disorders - Uppsala Craniofacial Center, ERN Cranio

Akademiska Sjukhuset

Kraniofaciala teamet, ERN Cranio Craniofacial team, ERN Cranio

Sahlgrenska Universitetssjuhuset