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Pr Christine BODEMER
Function(s)
- Clinical expert
- Coordinator of a network of experts
- Coordinator of expert centre network
- Expert reviewer for Orphanet
- Investigator of clinical trial
- Investigator of research project
- Manager of registry
- Principal investigator of clinical trial
- Research project's coordinator
Contact email:
christine.bodemer@aphp.fr
Phone 1: 33 (0)1 44 49 46 72
Activity(ies) registered in Orphanet:
Legend: Activity terminated
- EDELIFE: A prospective, open-label, genotype-match controlled, multicenter clinical trial to investigate the efficacy and safety of intra-amniotic ER004 as a prenatal treatment for male subjects with X-linked hypohidrotic ectodermal dysplasia (XLHED).
- The ASCEND Study: A Phase III, Multicenter, Double Blinded Vehicle Controlled Study of TMB-001 With a Parallel Optional Maximal Use Arm- in Treatment of RXLI or ARCI Ichthyosis in Subjects Aged >6
- GM: groupe de travail sur les ichtyoses sévères - partie du réseau Génodermatoses et Méditerranée
- GM: Génodermatoses et Méditerranée
- Réseau sur le syndrome de Rothmund Thomson
- GM: groupe de travail sur l'Incontinentia pigmenti et la dysplasie ectodermique anhidrotique - partie du réseau Génodermatoses et Méditerranée
Expert reviewer for Orphanet
- ORPHA2591 - Infantile myofibromatosis
Institution(s) where activities are/were carried out
Service de Dermatologie
Hôpital Necker-Enfants Malades
149 rue de Sèvres
75743 PARIS
FRANCE
Phone 1:
33 (0)1 44 49 46 68
Phone 2:
33 (0)1 44 49 43 37
Contact email:
dermatologie.rdv.nck@aphp.fr
Institution's website
Centre MAGEC (MAladies rares Génétiques à Expression Cutanée)
Hôpital Necker-Enfants Malades
149 rue de Sèvres
75743 PARIS
FRANCE
Phone 1:
33 (0)1 44 49 43 37
Phone 2:
33 (0)1 44 49 46 68/52
Contact email:
dermatologie.hdj.nck@aphp.fr
Institution's website
Filière FIMARAD
Hôpital Necker-Enfants Malades
149 rue de Sèvres
75743 PARIS
FRANCE
Phone 1:
33 (0)1 44 49 25 82
Contact email:
contact@fimarad.org
Institution's website
ERN-Skin Coordinating Center
Hôpital Necker-Enfants Malades
149 rue de Sèvres
75743 PARIS
FRANCE
Phone 1:
coordination@ern-skin.eu
Institution's website
INSERM -
Institut National de la Santé Et de la Recherche Médicale
Institut National de la Santé et de la Recherche Médicale
101 Rue de Tolbiac
75654 PARIS
CEDEX 13
FRANCE
Institution's website
Service d'Hématologie adulte
Hôpital Necker-Enfants Malades
149 rue de Sèvres
75743 PARIS
FRANCE
Phone 1:
33 (0)1 44 49 54 16
Contact email:
avis.hemato.nck@aphp.fr
Institution's website